Dear son,

I remember the moment it truly hit me that your autism was forever. And not just a word. Or a thing that other people’s kids had.

It wasn’t when your mom told me that something seemed off. Or when she did the checklists late at night.

I remember I got so mad at her. I defended you.

I listened to her say things like nonverbal and delayed and I refused to believe that was you.

I couldn’t figure out why she was looking for something that simply wasn’t there.

Those kids weren’t you. I mean, we had things to do, kid. Me and you.

We were going to fish and hunt. I had already mentally planned our trips up north with the boys.

I was going to spend endless hours playing baseball with you like Grandpa did with me. I would coach your teams.

I was going to teach you to ride a bike. Drive a car.

You were my firstborn. And I imagined you being my shadow.

I had plans for us.

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Your autism didn’t hit me until it got hard. You didn’t sleep. You refused to eat. You screamed at everything.

I’d take you outside to the backyard and to the garage and I remember watching you look at the swing set wondering what to do. You stared at the sandbox and toys. You refused to hold the bat I bought you.

You looked through trucks. I bought you a motorized car to ride around in. You refused to sit in it.

I couldn’t figure it out, son. I couldn’t figure you out.

When we said goodbye to kindergarten I knew it was real.

I spent some time being sad. You didn’t know that. Neither did Mommy.

I didn’t show anyone. I couldn’t.

I remember sitting in a boat with your “uncles” and listening to them talk about their kids. One was starting hockey. Another one was learning to read. They were your age, son.

I knew we were different. I know now that it was OK for me to be sad and to talk about my feelings and that I could have confided in them for support.

Now you are 8. You are a big boy. You still have no words. You have never ridden a bike. We have never had one of those father-son moments I pictured when you were a baby.

But I’m learning that’s OK. And that I still have incredible things to offer as your dad, even if they weren’t the things I originally envisioned.

I want you to know that you changed everything for me. You showed me a world that I never knew existed.

Last night I watched you lie on the ground in the middle of a baseball field and stare at the clouds with your mom. You pointed up. You squealed. You smiled.

You threw a ball. You clapped. You jumped. You wrapped me in the hugest hug.

Then you were done.

I realized last night it wasn’t the baseball game I pictured. But it still counts.

I want to thank you, kid.

You have taught me patience. You have taught me it’s OK to be different.

You have taught me it’s OK to be sad when life doesn’t go as planned.  You have taught me that it’s OK to talk about those feelings.

You have taught me to fight for what is right. To stand up and say this is wrong, and to encourage others to stand alongside you and say the same.

Your mom and I have spent eight years trying to find your voice. And honestly, we don’t know if we ever will.

But something amazing happened anyway. You gave me a voice, son.

My job on this earth is to create a world for you, and other kids like you. To be the voice you don’t have, and to build the kind of community I want to see you grow up with.

I used to shy away from people with disabilities, Cooper.

Well, maybe that is only partially true. Before you, before autism, I was so caught up in my own world that I probably wouldn’t have even noticed.

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Now, I see things differently.

I notice. You did that for me. And I hope my example will do that for others.

You opened up this place in my heart, kid.

I promise you I will spend my life keeping you safe and making this world better for you.

Thank you.

Love,
Dad

This post originally appeared on the Finding Cooper’s Voice

Jamie Swenson

Jamie Swenson runs his own insurance business in Minnesota and raises three busy boys with his wife Kate. When he’s not coaching sports or arguing with tiny versions of himself, he’s dreaming about sitting in a boat and fishing. You can follow his family's journey on their website, Finding Cooper's Voice, and on Facebook.